we got the call, august 25th will be libby claire's next surgery, then another shortly after.
summer is almost over. we have been really busy since our last blog post. we went to florida for our family vacation. a year we have waited to return. return to my parents beach house where libs fell, the PICU, the visit with the EMT's & firefighters, the beach, the waves & those seagulls. we finally returned. it was stressful for the first 2 days then we settled in & enjoyed every minute. the beach was beautiful, of course! libby claire was in her element. she could run, swim, dig, play, get dirty, eat snacks & share with the seagulls. followed by chasing them up and down the beach. we went to see the first responders who were in the ambulance with libs. it was so special to thank them & let them see her in true libby claire"ism" running & climbing in and out of the firetruck. we also went to see everyone at all children's hospital. they were in the process of building the new children's hospital while we were there & so we finally got to see the new ACH. we loved seeing everyone. it was a happy, great visit. a little less emotional b/c the building was new. we didn't see libby claire's room or the familiar halls or any of the spots we would fequent last summer. it was wonderful. go to mcgarity clan to see pictures from our family trip.
it was pretty uneventful until the ride home. our 10 hour trip became a 14 hour trip when our left rear tire blew out in our suburban. not fun! thank God for the good samaritan~
back at home now we have had therapy, doctors appointments & daily libby claire stuff. she continues to test our patience & i think takes true pleasure in watching us juggle a baby, 3 older children & still chase her around. her helmet might as well not be on b/c she rips the velcro & takes it off every time we put it on her. during libs coma i specifically remember praying for her just to move, for her to be able to blink, lift her arms, hug me, hold my hand, one day to walk & wow...for her to run. they said those might come but might never. i get flustered & short on patience some days but daily, almost hourly i am reminded of where we were last year. i am so grateful for those fast little legs running, climbing & jumping. even if i am the one chasing after them, barely able to keep up.
we are going to have our own little "SUPERGIRL." yes, we have decided & with libby claire's cranio-facial specialist to go with the kryptonite. we got the call this morning & dr. mclanahan & dr. matthews will be operating on libby claire on august 25th. it will be similar to her surgery last september 3rd. as we have talked about they will place the material in, let it set & harden. then will go back in about 2 weeks later to shave & polish the prosthetic down & make it smooth. we are not sure about csf lumbar drain or anything neurosurgery wise. i guess dr. mclanahan will see what he thinks while she is open. the ultrasound done of her brain shows that the ventricles are slightly enlarged & she is where she should be post-traumatic brain injury. we will have to go & have our pre-surgery consults. probably, go to levine & have typing done. that is where they do a pick line & type her blood. so they can order her blood type for the surgery. not sure what else we will need to do but i am sure we will hear in the next few weeks.
some days are semi-normal. we go about our day & just do stuff. but some days are not normal. we can not sleep, fuss at the big kids, stress about the running or the bumps or boo-boo's that could happen. we think of the 7 minutes we waited for the ambulance, watching our girl struggle to breathe. her body limp. we remember the days, unending days & nights of wandering not knowing of the future. all the bad creeps in and saturates our mood & minds. but what glorious presence was there with us. we still read psalms each day. we read them to lc during the worst & best. they are boldly praising God but honest about pain & struggle. we are real, facing & living something we never imagined or expected. we have always trusted & felt that peace that only God can bring. well He is bringing it. in a big way. we are so ready for august 25th.
our little busy hard head will finally have a hard head, literally!
so bring it on!
ps-my mullet is really growing out & dr. matthews says he will try to only shave the incision site. so i might not have my head shaved again. we will see? although, if anyone can wear the billy ray it is me.
love, libby claire :)